I was 20 when I was told that I had Fibromyalgia. At the time I didn’t know whether to laugh or cry. I’d been a fit teenager, dancing and weight lifting untill I turned 18. Thats when things went downhill, But thats a story for another post.

It had been 2 years since I fell ill and I was desperate for answers to why I was in so much pain all the time. I couldn’t take another ‘I don’t know’ from another Dr. Little did I know that it was going to be a diagnosis that would take over my life forever. Up untill this point I held hope that someone somewhere would be able to ‘fix’ me. So being told I had an incurable illness that they didn’t know how I got crushed me.

Symptoms of Fibromyalgia Include –

  • Wide spread muscle pain
  • Headaches/Migraines
  • Muscle stiffness
  • Cramps
  • IBS
  • Loss of memory (known as ‘brain fog’)
  • Insomnia
  • Fatigue
  • Sensetive to touch
  • Muscle Spasms
  • Joint pain
  • Depression
  • Burning sensation
  • Nausea
  • Loss of feeling in limbs (Numbness)
  • Hot and cold sweats due to not being able to regulate your body temperature normally

These are just SOME of the symptoms that I personally experience daily. There are too many to list!! I often find myself laying there stairing into space, numb, not even thinking anything, just empty. The nights can be crippling, the quilt/blankets can feel like weights on top of my body crushing me. Slight movement will send electrical spasms through my body. The pain can get excruciating and unbarable.

To deal with the pain I have to take Morphine amoungst other medications every single day and I’ll more than likley be on it for the rest of my life. There are so many different therapies or treatments out there to try but I’ve done most of them. Some help, some don’t. Some days I feel like It’s a good day and I can get house work done, then there’s the other days where I feel like I can’t take it anymore and get stuck in bed with constant tears in my eyes. See my other post on how I help ease pain with natural remedies here.

Fibromyalgia is an invisible illness. You can’t tell someone has it just by looking at them. Someone who has it may look completly fine on the outside, but on the inside are in exruciating pain. It’s said that it’s a possible 1 in 20 people with Fibromyalgia. It’s more common in women than men and alot of people go undiagnosed as it’s a hard illness to diagnose due to it having such similar symptoms to other illnesses. If you’re experiencing alot of these symptom’s PLEASE get some help and dont sit in silence. There are Drs out there that are willing to help you.

There isn’t enough awareness for Fibromyalgia out there or enough support systems. PLEASE share this post on social media to help get the word out there. There are so many of us fighting for our rights for help and to raise awareness so others don’t feel alone and show this is REAL. Chronic Invisible Pain is REAL.

Much Love – Mrs Slee-Jones xx

You May Also Be Interested In Reading –

Chronic Fatigue
Managing Pain Without Meds
The Physical Side Of Mental Health
I’m Not Ignorant I Have Anxiety
Dear Teacher
Helping A Child With Anxiety/Depression
What Is E.D.D
Positive Quotes To Get You Through The Day

14 thoughts on “Being Told I Have Fibromyalgia”

  1. I am sorry about the diagnosis. There are a lot of things to consider and it is important to know all of the facts. The illnesses where you can’t see it is hard, especially when you want to be mindful of others. Thank you for sharing all of this information. Sending you lots of love.

    Nancy ♥ exquisitely.me

  2. My heart breaks for you, Reading this.
    I was 19 when I was diagnosed and, like you, felt like my whole world had just crashed around me. Its been 11 years since diagnosis now and I’m managing, some days. Other days, not so much.
    It’s a battle and we have to keep fighting.
    So brave of you to share your story!
    Please keep sharing stories like this 💜
    Sending you gentle hugs

    xo Emma

    1. Mrs. Slee-Jones

      It’s 10 years next month for me and it doesnt get easier. It really is hard to deal wth isnt it!!
      Thankyou soo much!!
      Gentle hugs xxx

  3. It must be so frustrating to keep seeing Doctors who don’t really understand the condition and can’t offer you any solutions other than things that ‘might’ work. My Mum suffers from it too, and the only advice she got from her rheumatologist was to keep to a healthy weight! She IS a healthy weight and fights every day to do yoga or Pilates but gets so mad at her body and the waves of exhaustion.
    I’m so sorry you’ve got it so young. I really hope that more research will go into fibro and a cure or treatment found very soon.

    1. Mrs. Slee-Jones

      Ohh it really is very frustrating!! Feel so much for your mum, I think Drs tend to palm it off alot. Thanks for your lovley words!! x

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