I was 20 when I was told that I had Fibromyalgia. At the time I didn’t know whether to laugh or cry. I’d been a fit teenager, dancing and weight lifting until I turned 18. That’s when things went downhill. But that’s a story for another post.
It had been 2 years since I fell ill and I was desperate for answers to why I was in so much pain all the time. I couldn’t take another ‘I don’t know’ from another Dr. Little did I know that it was going to be a diagnosis that would take over my life forever. Up until this point I held hope that someone somewhere would be able to ‘fix’ me. So being told I had an incurable illness that they didn’t know how I got crushed me.
Symptoms of Fibromyalgia Include
- Widespread muscle pain
- Muscle stiffness
- Loss of memory (known as ‘brain fog’)
- Sensitive to touch
- Muscle Spasms
- Joint pain
- Burning sensation
- Loss of feeling in limbs (Numbness)
- Hot and cold sweats due to not being able to regulate your body temperature normally
These are just SOME of the symptoms that I personally experience daily. There are too many to list!! I often find myself laying there staring into space, numb, not even thinking anything, just empty. The nights can be crippling, the quilt/blankets can feel like weights on top of my body crushing me. Slight movement will send electrical spasms through my body. The pain can get excruciating and unbearable.
To deal with the pain I have to take Morphine amongst other medications every single day and I’ll more than likely be on it for the rest of my life. There are so many different therapies or treatments out there to try but I’ve done most of them. Some help, some don’t. Some days I feel like It’s a good day and I can get housework done, then there are the other days where I feel like I can’t take it anymore and get stuck in bed with constant tears in my eyes. See my other post on how I help ease the pain with natural remedies here.
Fibromyalgia is an invisible illness. You can’t tell someone has it just by looking at them. Someone who has it may look completely fine on the outside, but on the inside are in excruciating pain. It’s said that it’s a possible 1 in 20 people with Fibromyalgia. It’s more common in women than men and a lot of people go undiagnosed as it’s a hard illness to diagnose due to it having such similar symptoms to other illnesses. If you’re experiencing a lot of these symptom’s PLEASE get some help and don’t sit in silence.
There are Drs out there that are willing to help you.
There isn’t enough awareness for Fibromyalgia out there or enough support systems. PLEASE share this post on social media to help get the word out there. There are so many of us fighting for our rights for help and to raise awareness so others don’t feel alone and show this is REAL. Chronic Invisible Pain is REAL.
Much Love – Mrs Slee-Jones xx
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